Health Huddle – Rare Diseases Day

National Organization for Rare Diseases NORD logo

List of Rare Diseases Among our Buchanan Chronicle Readers

by Rebecka & Julie Hoyt, Editor & Photographer

Did you know that there is a day set aside for rare diseases? On the last day of February each year, this year is Feb. 28, 2022 all rare diseases are made aware. We put out a call to our followers on Facebook to have them list the rare disease they know. You may click on this link: National Organization for Rare Diseases website to see if a disease you know about is on this list.

  1. Alpha-1 Antitrypsin Deficiency
  2. Charcot-Marie-Tooth Type 1X (CMT1X)
  3. Cystic Fibrosis
  4. Dermatitis Herpetiformis
  5. Essential Tremor
  6. Idiopathic Pulmonary Fibrosis
  7. Immune-Thromboyctopenia
  8. Multiple Myeloma
  9. Polymyositis

We would like to wish all of the people that have these rare diseases and others that we may not know about yet, the best for you and to never give up! To show awareness of rare diseases, check out the shopping link on the National Organization for Rare Diseases website! Please reach out to us via email: or message us on our Facebook page if you would like to tell us your story and make more awareness of a rare disease as some rare diseases dedicate a month to make awareness for them.

About NORD: NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.  NORD, along with its more than 300 patient organization members,  is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

For more information check out the NORD (National Organization for Rare Disorders) website!

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